My official donation certificate: read more »
Sharon, I decided I wanted my Impact for Trey to be a fundraiser. I wanted to wait to tell you and launch it on his birthday. You are an inspiration to me, I thank you and Trey for this. I have included what I wrote about the story behind the fundraiser. I would really appreciate it if you'd read over it and let me know if it is ok with you and if it is all correct. I have also included a picture of Lorelei's Flower. If you would rather donate to another foundation/charity please let me know. "On Mar... read more »
Almost three years ago, on March 23, 2009, we welcomed out little boy Trey into the world, then on April 4, we let him go to become an Angel in Heaven and not live a life of sickness. His short life made a HUGE impact on our lives and the lives of our loved ones. This impact inspired me to start my blog and reach out to other Angel Parents and inspired me to spread the word about CHARGE Syndrome, the very condition that ultimately took my son's life.Every year I do a service project in his honor, as that... read more »
Ok, so I said I would NEVER "tweet", but technically my recent decision to add Angel Steps to the Twitter world does not have ME tweeting, but Angel Steps tweeting, the difference is I am not trying to follow everyone and their mother, I am only interested in following those who are Angel Parents, are with support groups, are family members friends of Angel Babies. If the previous criteria applies to you, please follow me on Twitter athttps://twitter.com/#!/Myangelsteps read more »
What is CHARGE Syndrome you may ask as we did, blind-sided by the diagnosis the morning after Trey's birth. Here is some information about the Syndrome from www.chargesyndrome.org. "CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome ... read more »
I am SUPER excited to share that the Angel Steps blog will be moving to a new domain name. The new domain name is www.angelsteps.net. I look forward to the transition to the new site, maybe a new look, new features, more resources, and ultimately more exposure and help for grieving parents world-wide. I have my work cut out for me but I am ready to dive in!!! Be looking for an Angel Steps logo as well! Thank you to all of my followers, readers, friends, and family for your love and support of this site, ... read more »
